genetic disorder :
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- Golf outing to benefit Sanfilippo syndrome foundation
A foundation started in 2010 is raising money for research and awareness of Sanfilippo syndrome, also known as MPS III. CHAMPAIGN — Kelly and Jake Hubert learned nearly four years ago that their now-6-year-old daughter, Livia, has a rare, incurable genetic disorder called Sanfilippo syndrome. Now, through a foundation they started in 2010, they are striving to raise money for research and ...
June 11, 2013 - The Champaign News-Gazette - Monticello residents raise funds for one of their own
The Monticello community is coming together to raise money for a local child diagnosed with a rare genetic disorder.
June 11, 2013 - Journal & Courier - Rare double transplant aids man with rare disease
A 31-year-old man's rare genetic disorder caused him to have 18 heart attacks over nine years. But a combined heart and liver transplant has made a big difference.
June 9, 2013 - KPLC Lake Charles